World Hemophilia Day – April 17

April 17th is recognized annually as World Hemophilia Day. This day serves as an opportunity to raise awareness, increase knowledge about the condition, and shed light on its symptoms and complications. It also encourages healthcare organizations to take necessary steps to combat the disease and provide support to those affected by it.

What is Hemophilia?

Hemophilia is a condition that affects blood clotting. It is an inherited disorder resulting from a deficiency in one of the blood clotting factors, making clotting difficult and increasing the risk of prolonged bleeding.

Types of Hemophilia

  1. Hemophilia “A”: This is the most common type, also known as Hemophilia Type 1.
  2. Hemophilia “B”: Also referred to as Hemophilia Type 2, it is more prevalent in the Arab world.
  3. Hemophilia “C”: This is a rare type of hemophilia.

Hemophilia Worldwide

  • In Saudi Arabia, the number of hemophilia patients is estimated to be between 3,000 and 4,000 individuals, with 99% of them being males.
  • Globally, there are approximately 400,000 people living with hemophilia.
  • Out of this number, around 160,000 have been diagnosed with Hemophilia Type “A” or “B.”

Symptoms of Hemophilia

  • Bleeding can occur in any part of the body, whether externally or internally.
  • Frequent falls among children can result in bruising and bleeding in joints, particularly in areas like the knees.
  • Joint stiffness and rigidity.
  • Muscle weakness.

Risk Groups for Hemophilia

  • Hemophilia can affect anyone, regardless of age or location.
  • Most severe cases of hemophilia primarily affect males.
  • If one parent carries the hemophilia gene and the other is affected by the disease, there is a likelihood that females may develop the severe form of the disorder.

Treatment for Hemophilia

  • Treatment for hemophilia patients includes the injection of the missing clotting factor.
  • Bleeding episodes are managed when they occur.
  • Comprehensive care for those affected.
  • Clotting factors not derived from blood or plasma are used as part of the treatment.

Statistics and Social Impact

  • 29% of fathers of children with hemophilia choose their jobs based on the need to care for their affected children.
  • 59% of parents with an affected son report that their child is treated differently by peers due to the condition.
  • Hemophilia affects the ability of patients to form close friendships (36%).
  • 50% of those affected experience severe pain.
  • 49% develop arthritis due to the disease.
  • 59% of those affected have limited mobility.

World Hemophilia Day is an opportunity to raise awareness about the condition and provide support to those affected by it. It is essential for the global community to work together to make progress in treating this disease and improving the quality of life for those living with it.

Blood and blood forming organs
Blood and blood forming organs

اليوم العالمي لمرض الهيموفيليا ـ 17 أبريل